About Us

The Persatuan Psoriasis Malaysia (Psoriasis Association Of Malaysia) is a registered, non-profit, self-help, lay organisation of psoriasis sufferers started in 1987 to help improve the life of people with psoriasis and their families. It is funded by public donations, membership dues and grants from friends in the pharmaceutical industry and is served by a few Medical Advisors who are practicing dermatologist from the Dermatological Society of Malaysia.

Psoriasis is a chronic, autoimmune mediated disease which symptoms are seen visibly on the skin. It occurs when the immune system sends out faulty signals that speed up the growth cycle of skin cells. Psoriasis is not contagious.

Individuals with psoriasis are at an elevated risk to develop other chronic and serious health conditions also known as “comorbidities.” It is estimated that up to 30 percent of people with psoriasis develop psoriatic arthritis. People with psoriatic diseases also are at greater risk of developing cardiovascular disease and depression.

125 million people worldwide—2 to 3 percent of the total population—have psoriasis, according to the World Psoriasis Day consortium. Studies show that between 10 and 30 percent of people with psoriasis also develop psoriatic arthritis. (Source: http://www.psoriasis.org/learn_statistics)

Given that the population of Malaysia is 28,250,400 (Source: Population, Household and Living Quarters (2010), Department of Statistics, Malaysia.) – it is estimated that 500,000 to 800,000 Malaysians are afflicted with Psoriasis.

The association is managed by volunteers. Should you have be a psoriasis patient or caregiver with time or talent to offer, please contact us.

a) Website: http://www.psoriasismalaysia.org

b) Email Updates From The Association : http://bit.ly/UdSr5Y

c) Facebook: https://www.facebook.com/psoriasismalaysia

d) Twitter: @psoriasisMY

e) Join us on The Psoriasis Malaysia Forum for non-facebook users. Click Here

More About Psoriasis

types-of-psoriasis

 Types of psoriasis

 Psoriasis appears in a variety of forms with distinct characteristics. Typically, an individual has only one type of psoriasis at  a time. Learn more about the types of psoriasis »

 

psoriasis-specific-locations-ears Specific Locations

Psoriasis can show up anywhere—on the eyelids, ears, mouth and lips, skin folds, hands and feet, and nails. The skin at  each of these sites is different and requires different treatments. Read more on where psoriasis shows up »

causes-of-psoriasis-cytokines Specific Locations

Researchers believe that for a person to develop psoriasis, the individual must have a combination of the genes that  cause psoriasis and be exposed to specific external factors known as “triggers.” Read more about what causes psoriasis »

2013 Psoriasis Related Conditions

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46 thoughts on “About Us

  1. hi… this my first time join this forum…

    plz help me about how to join this session..

    thanks in advance…

    • psoriasismalaysia

      Hi Sabrie,

      To join the forum – visit psoriasismalaysia.editboard.com. Please sign in as a member and feel free ask questions or introduce yourself at the forum. If you need any assistance – please let us know.

  2. Dear Dom,

    I’m Chandra from Indonesia, I’m planning to visit Malaysia this year-end to see dermatologist specializing in psoriasis, specifically in Kuching, Miri and Kinabalu, and which is more recommendable? I’d appreciate very much your prompt reply!

    Thank you and God bless!

    • psoriasismalaysia

      Hi Chandra, Thanks for your comment. Unfortunately I am unable to advise you on Kuching, Miri and KK. I hope some of the readers of this blog will be able to help you.

      Should you be visiting Kuala Lumpur – please see the names of the doctors we have posted on this blog. Personally, my derm is Doctor Koh as listed and he has been my dermatologist for many years. All the best 🙂

  3. my hubby’s friend is suffering from psoriasis and conditions are getting worse.. As finances are not very comfortable, we would like to see this friend recover well.. He has been visiting our Gourvernment hospitas but conditions still worsen.. Can u pls recomend a ‘resonably priced’ dr or medication for this condition.. It breaks my heart to see a friend suffer.. BTW we live in subang jaya and our friend in PJ. Thanks

    • psoriasismalaysia

      Hi Donna,

      Thanks for your email. Psoriasis can be heart breaking and many of the members of the Psoriasis Association understands how it feels to have this condition. Without knowing the condition of your friends – first is it localised psoriasis (1 or 2 spots) or systemic (all over the body). If it is systemic – the first thing to do is to see a professional dermatologist who deals with psoriasis patients. Best to seek out the dermatologist which are very familiar with treating psoriasis. Here are some doctors that we have experience with (see link below). I am Dr Koh’s patient and he is familiar with psoriasis and has the expertise to treat and advise. From my experience with Dr Koh – a patient can also discuss his/her condition and the options to manage the condition given the available budget. His clinic is in PJ (Dsara Uptown) and he also consults at University Hospital PJ, on Fridays.

      https://psoriasismalaysia.wordpress.com/2010/07/17/doctors-that-association-members-reccommend/

      All the best and keep us updated.

  4. hi donna,
    i would like to give some opinion, but my english is not good..i hope u can understand what i’m trying to explain.

    I have psoriasis for 17 years. But started to get the medicine since 1998. I hv go to so many clinic at jb and even singapore but finally i found that i only can survive with medicine from gov hospital.. Please meet the specialist and do the blood test to get the right picture of which degree of psoriasis that u’r husband friend have. I hv a plague psoriasis all over the body. Sometimes it is ‘gatal2’.

    Few advise from the specialist:
    1. Reduce ur weight (if ur over weight) n it work on me
    2. Reduce to much protein in ur diet.
    3. Make sure wear clothes that has been dried under sunlight.
    4. Be positif in ur life (psoriasis patient can not stressed or it will be worst)
    5. Try to be under sunlight at the beach.

    Avoid:
    1. Dirty environment.
    2. Steroid medicine unless ur in the critical stage..

    Few medicine that can be used..
    1.betamethasone
    2. Daivonex
    3. Daivobet
    4. Aquos
    please get it from the Dr. Coz they know the right doses.

    And last but not least..
    I drink pink guava juice every night ang morning and it really help me to reduce my psoriasis..and at certain2 time it gone..but psoriasis will come and go…so after a few month i got it back but not as worst as be4.. I used sunrise brand.
    (it expensive(to me) but really work -for me lah)Too many to share but not enough time so if u have anything to ask you can email me at poohjaybee@y.c. Tq

    • hi,
      my dad has psoriasis for 20 years and is erythrodermic psoriasis, (which means whole body is covered)]
      he used to take methotrexate (MTX) but it only work for a while. if you stop taking it, it flare again

      so he stop all western medication and turn to herbal med.
      and he drinks alot of water. at the moment he’s drinking MRET water. you can get it from KL and JB
      by far this is the best he has ever been without the use of western medication .

      alot of rest and emotionally stress free is very important.
      he avoid peanuts and most beans. (too high in protein is not good for him)

      all i can say is every body is different.
      some of his friends use simple remedy

      1. udo’s oil ( http://oilthemachine.com/) and it works for them.
      nothing but udo’s oil.
      2. olive oil or olive leaf extracts.

      my dad did tried all this but it didn’t seem to work as well as just water and olive oil extracts.

      he doesn’t flare up so much now and is on the journey to recovery.

      i have psoriasis too, but is very mild.
      i’m 30 years old and when i was 12 i had it all over my forehead and elbow during exams period.

      when exam finish, it will slowly go away.

      at age 20, when i was in Uni, i’ll get it during exams and assigment period.
      so i started exercising alot, going to the gym and swimming.,

      i believe it was because i was young and am very careful of my diet (since my dad has it for such a long time)

      i manage to control take it under control.

      hope in the information will find you some relief.
      there is hope !!

  5. Sylvi. a A. Emelius

    Hi. Glad to find out this page. I have suffered this skin problem since I was in form five and getting worse when I further my study. now I’m working and this because of this, I’m stressed because sometimes people will ask me why my face got reddish. feel like dying.

  6. I have a very severe scalp psoriasis can anyone suggest what type of shampoo i should use?

  7. hai,glad to find out this page.my friend has suffered this psoriasis arthritis for more than two months.he has a very severe scalp psoriasis and now having joint pain such as inflammation,swelling all.he really suffered until he cant even walk. He has been visiting our Gourvernment hospitas but conditions still worsen.Can u pls recomend a dr or medication for this condition?plz i really cant see my friend suffer..

  8. Hai,i have psoriasis(mild),so how to heal this skin problem,thank you

    • psoriasismalaysia

      Hi. Thanks for visiting. Have you visited a dermatologist yet? Such a specialist doctor is advisable to work with and manage your psoriasis. There is a list of specialist doctors on the front Page – right hand side.
      .

  9. Hi , I from pulau Pinang , I suffering with psoriasis about 13 yrs alreadly …I saw a advestiment in China website hv alot of Hospital for this treatment , but it’s very far n costly for me . Any1 can help me??? Coz I going to marry soon ….Any treatment is in pulau Pinang ??

  10. Hi I m jayasri here i gt psoriasis since 3 years i m now 18 years old wat medicine can help me

  11. A product from the House of Healin called Derma X Premium claimed to be able to alleviate symptoms of psoriasis. Has anyone tried it? Is it effective?

  12. Sy dh 6tahun sakit ni…sy mmg nk cari inisiatif ubat suntikan….bg sy bkn sekadar moist kulit shj d perlukan tetapi immune dlm bgn pun perlu d beri perhatian…di mn blh dpt kan suntikan itu

  13. Hi i’ve had psoriasis for about 3 years now and it doesn’t seem to get any better.. Mind recommending a specialist for me please?

    • psoriasismalaysia

      Hi Fatimah, thanks for email. We have sent a message via email to your email address. Please let us know if you have received it or not. Many thanks.

  14. Hi, i have been living with psoriasis since i was 17 years old and now i am 40. I have tried a lot of medicine and it would the seem the only ones i can use is very expensive. My question is, are we entitled for tax deduction for serious illness?

    • psoriasismalaysia

      Hi Syed. Thanks for your comment. Psoriasis is currently does not fall into the category of diseases where medical expenses is tax deductible. Having said that, the Psoriasis association is working with the international federation of psoriasis association and the world health organisation to get psoriasis classified as a serious and chronic diseases. Once this is confirmed, we can approach the health ministry on this. This will take some time and we hope it will happen sooner than later.

  15. sy dh 11 thn mghidap psiorisis xlama lg sy akan berkwin.. sy risau mcm ne nk hlgkn pykit ni, keadaan pun semkin truk ,muka sy pun dh kne…

    • psoriasismalaysia

      Hi Azlin Majid, kita dah terima mesej anda. Sudahkah anda jumpa dermatologist? Sila emel kami jika hendak berbincang selanjutnya.
      Thank you.
      Dom.

  16. Hi, i have had psoriasis since I was 5yrs old and I am 33 this yr. My psoriasis are solely on the arms and legs. 2 yrs ago, I totally ditched my steroid cream and followed a regimen from this book called healing psoriasis by dr A Pagano. It works wonder for me and I was totally cleared of psoriasis for 2 yrs until I started drinking alcohol, not watching my diet, over stressed myself and etc. And now, plus the heat and haze, it has all came back again.

    Basically, this book explains that, for psoriasis patients to rid psoriasis, we must clean our internal organs of any toxins. When our body has too much toxins and not being eliminated properly, ie liver and kidney not function properly, the toxin will then try to be eliminated through our skin. But, before it cld be eliminated, out t cell will start to attack our skin. Basically, in order to get rid of psoriasis, we’ll need to keep our colon off toxin and make sure our liver n kidney is in good shape.

    Just want to share this piece of info and hope it might help. maybe you guys can also do some research on detoxification and psoriasis online for more info. I will be starting my cleansing of colon and the regimen again and will update on the progress.

    Cheers
    Elle

  17. psoriasismalaysia

    Hi Elle, thanks for your sharing. A few of us have tried the Pagano diet as well 🙂 keep us updated on your progress.

  18. Hi Elie, you should try Emperor Healing Qigong to detox and steghtened liver and kidney meridian and can evade psoriasis, as long as you do practice everyday 30 mins. Can give you the magazine publish in Chinese-health magazine .

  19. Hi,

    I just found out i have scalp psoriasis 2 years ago. All this while i thought it was just heavy dandruff until i realize the flakes are like hard pieces of plastic. Went to my panel clinic. The doctor said I’ll have it for the rest of my life, no cure just treatments and prevention to make it bearable. I’ve been using tar shampoos with topical meds like aquous, Xamiol, elomet, and few other names I can’t remember, I can bare with the scalp as it comes and go depending on my diet and stress level.

    But these past few months I have other problems. My hand joint and feet hurt, the sole, the fingers…whole foot. The doctor said I have plantar fasciitis and joint pain caused by psoriasis. Fine! Then last month foot started itching. First only few small hard bumps like mosquito bites around the feet then my hand started to get very dry and flaky too. Now both foot are itchy with bumps everywhere and I cannot stand the itch. The prescribe medicine does not work. My psoriasis is getting worst because I’m stress up because of this things i’m having. I used to managed my stress quite well but now i just cant bear it. I’m overweight but I used to play badminton every week until the psoriasis betray me.

    I’m looking for better solution, better doctor…I live in cheras so can anybody advice me on which normal clinic provide good psoriasis treatment (mind that I can’t afford high $$ specialist-that’s why i stick to panel until now).

    Thank you.

    Hani

    • psoriasismalaysia

      Hi Hani,

      This is Dom – Secretary of The Psoriasis Association. We have sent an email to you & provided additional information to help you. Thanks.

      Dom.

  20. Hai im new in here

  21. I have scalp psoriasis for few years. This year it become worsen. The psoriasis now spreading to behind my ears and inside my ear. I hv went to see a skin doctor, dr.ranjit. She gave me sabitar shampoo and medicine. Looks like its not working. That shampoo made my hair dry. It just make me more stressed. Any advice for me?

  22. Hi… Can you intro some specialist of psoriasis in cheras? I’m facing the psoriasis since I was 17th years old. I was meet up a lot of doctor but still can’t solve my problem. And now my psoriasis become more serious and lost control.

  23. hi, im having psoriasis since i was 9 years old, now i am 26. i suffering year by year, there is no soluton yet I find in recoveriong my situation. i have gone through so many types of treatment, oral medication, creams, injection & herbal medications. I had treatment in Arun clinic (Kulim, Kedah) for past 5 years. he is not giving any good councelling, just put injection for every follow ups. it caused moon face & swelling in my knees, i went to an operation for my knee recently. i have stopped taking treatment over there. curently since i statred to work in PJ, i have taking medicines from Daran skin spealist & cosmetiq clinic in PJ new town. seems like his medicines also not quite helpful. i have very severe psoriasis over my body & scalp. please do suggest me is there any best clinic i can go to, rather than spending my times with all these.

    • psoriasismalaysia

      Hi nishz – thanks for your posting. Have you tried internal medicine such as acitretin or mtx? I would suggest that you continue to look for a dermatologist that you are comfortable with and trust that he/she is working alongside to help you manage your symptoms. We will email you to follow up further

  24. Hi,im 22 years old.i having psoriasis over 4 year ago.from first I have scalp psoriasis then a few year later it spread to my body like red patches also my knee and elbow.please give me advice about food or effective solution

    • Hi Dicky , thanks for your message.
      . My name is Dom and I’m the secretary of the association. Could we first check if you are seeing a dermatologist? This is the most important step to take.

      With regards to diet, there are a few ways to approach this. One of the widely acceptable concepts is that when one has an allergy (due to something you have eaten), you may scratch (even unconsciously while sleeping) and the Koebner Phenomenon (trauma to the skin surface) will cause the psoriasis to appear.
      Hence if you have a diet that allows you to avoid allergic substances, you may be able to have less psoriasis lesions. Also take note that in order to detect if you are allergic to anything – this comes through trial and observation.
      The dermatologist that we have consulted have mentioned that allergy test do not bring up accurate results. Having said that – please do consult your doctor for further information.

      There are other diets practiced by psoriasis patients such as the gluten free diet and the “Pagano Diet” (search Amazon.com) for more information.

      Nevertheless a good diet that is low in transfat, rich in macro and micro nutrients will be good for patients of any illness. Something that is difficult to practice in Malaysia due to our tasty food heritage.

      You may try out the different diets available although we would advocate safety and wisdom in choosing the diet. Example consulting with a doctor about the diet (even if the doctor doesn’t believe in the diet – it is up to you to try as long as it is safe).If you think the diet is safe – then by all means, please do try and let us know how you are doing. We hope the above information has been helpful.

      Please check our website and under the post by Dr Bagel – do checkout his tips about diet and how it may affect your psoriasis. We hope the info we have given helps. Do signup with our Facebook to connect with the other psoriasis patients.

  25. Hi , i’m 20 y/o .. I’ve got a scalp psoriasis since i was in form4 and the dermatologist said it was a mild psoriasis but no cure and so they gave me some medicines including polytar shampoo , cetrimide 1% lotion , 2% of salicyclate acid cream , 1% of hydrocortisone and betamethasone 17-valerate cream 1:4 . At first it’s work on me and the scalp is reduced so then i stopped but i’ll apply it when the scalp appear is gettin itch and worse again. I hate to apply the cream because it make me feel uncomfortable so i just depends on the shampoo ,rarely apply the cream but never tell the dermatologist the way i applied my medicines because i thought it wasn’t serious . but after a year it spread to my back of ear ,in my ear and sometimes it spotted somewhere on my skin. Then , i saw some white spot at my private part which make me wonder ..would psoriasis will be spotted at that area too?? Should i apply the medicine given at the area?? Is psoriasis make my private part become itch? Please help me ..i really worry if my psoriasis start to begin at this area 😦

  26. Hai I’m here to share my story and concerns.. I’ve been having psoriasis since I was a child (around the age of 10 to 12) and now I’m 25y/o. I did went to the doctors (GOV hosp) since the first outbreak (it was all over my scalps and they forming like another layer on my scalp..it’s embarrassing, itchy and the sweat collection in between the layers causing it to smell a bit), but I defaulted from my treatments a few times due to various reasons. In 2012 they flare up once again on my forehead, so I decided to see the doctors, but then I defaulted once again since they seem to get better and I was bored of the needs to do a followup when I know the treatment was only symptomatic. But now I had it again and it bother me whenever I looked at the mirror having to face up the red spots on my forehead that is itchy and scaly and the facts that I have to go out (to works and sort) in such condition (sometime makes me want to hide it in someways). Now that I already defaulted for 2y from the treatment, I had no longer have the medication that I used to have from the hospital. I wished not to do the followups since I don’t get the point of doing so apart from waiting for the prescription slip and straight away to the pharmacy for the medications. But I don’t know what the name of the cream that I used before, or else I could already bought it in the pharmacy myself (if anyone knows it please tell me).

    The thing is through out the years of having this disease whats really hit me is that doctors used to say to me that I should know that there’s no cure for this disease and the treatment was only to reduce the symptoms. I understands that it’s an autoimmune disease and it’s hardly had any cure for those kind of diseases (just like rhinitis that I had too). But in term of reassurance part to comfort me as a patient, from the stress of having the disease and the tiring hours of waiting in every followup that I went, being told that I could never be cure might have get me a little depressed over this whole ordeal. Sincerely me from KL.

  27. hi. Im 25 this year and i had it since 5 years old. my condition starting from the scalp, then to my scrotum and manage to move it to a more manageable spot which is the left leg. However, i realised that every time i accidentally scratched it, my urine schedule is disrupted. I had to pee every 15-30minutes. If not, the urge to pee but nothing comes out. It has affect my work life as i cant be going to the toilet that often and this leads to stress over unfinished work. I would like to note that these little things affect one another and lead to STRESS. Again, my condition recently has also worsen when I cant control my emotions and short of breath. My parents are negligent about this so i only have myself to care for.
    Just wanted to share that our mental and emotional health may be the best solution to psoriasis. Lets stay positive and do our best to get rid of all the negativity that can affect our mental and emotional health. cheers

    • Psoriasis Association Of Malaysia

      Thanks for sharing your comments. We hope the medical advice from the dermatologist and other related specialist is providing you medical care to manage your condition.

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