Making our voices heard


Psoriasis is always deemed as a non-life threatening skin condition, hence don’t usually get enough funding in MOH compared to other diseases such as cardiovascular or oncology. However, all of us patients have to go through the emotional stress and social stigma throughout our lives. That is more taxing on mental health on the long run. Do know that we have to dig deep to find our own inner strength to face the world daily. Let us make our voices heard. Let us all help spread the awareness of this life long condition.

https://cilisos.my/500000-malaysians-suffer-from-this-lifelong-disease-but-there-is-no-cure-for-it/

 

It’s been a while


Firstly, PAM would like to apologise on the silence since October/November 2019. Time is just zooming too fast for us volunteers to do more advocacy! We are officially in March 2020 with lots of uncertainties with Covid-19 outbreak and changes in Malaysia’s political scene.

Nevertheless, it’s business as usual for us psoriasis warriors and if you enjoy getting information via podcasts (best for commuting to work/school/college/chilling at home), do check out this link with lots of information on Psoriasis.

https://www.psoriasis.org/podcast

Happy World Psoriasis Day 2019!


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Many of times psoriasis patients wonder why should they join PAM? While we are run by 100% volunteers (and there isn’t many of us!), we can get less efficient and disorganised, we still believe in the purpose we are serving. To connect and support each other going through this long journey called Psoriasis. No one else truly understands our struggle except the next fellow patient. Through this organisation we have met amazing people that can achieve greatness despite their condition and we have met healthy individuals that give their time to support us because they feel for us. Many thanks to our medical advisors, hospitals and sponsors that have been supportive of our initiatives throughout the years. Help us normalise Psoriasis and make society aware of this condition. Do this for our next generation!

WPD & PAM Family Day 2019


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It’s time to celebrate us! The only event that allows us psoriasis patients to get to know each other and form the support system. This year we have moved to a new location with bigger space thanks to Hospital Kuala Lumpur and our generous pharmaceutical sponsors Novartis and Leo Pharmaceuticals.

Do RSVP early to secure your seats! Bring the family too as we will have activities to keep the entire family (kids especially!) entertained. This event is free for PAM members! If your membership has lapsed, this is a best time to renew  (RM60 for 3 years subscription) and allows you access to all the events we organise. This token fee is use to run the association as we are entirely on a voluntary and non-paid system.

Wondering where MCNCC is? 15, Jalan 18/16, Taman Kanagapuram, 46000 Petaling Jaya, Selangor and Mr Google says it’s off Old Klang Road! https://www.google.com/maps/MCNCC

Want to sign up as a member? PAM Membership Registration

Kempen Kesedaran Psoriasis 2019


5 hari lagi sehingga kita berjumpa di Wad Dermatologi, Hospital Kuala Lumpur! Marilah kita sama-sama mendengar pandangan pakar kulit dan pakar nutrisi tentang psoriasis dan cara untuk mengawal simptomnya. Kali ini kita akan ada pameran daripada organisasi lain yang membuat sabun dan lotion yang sesuai untuk kulit sensitif. Sokongan anda amat penting supaya kita mempunyai suara yang kuat untuk tingkatkan kesedaran psoriasis di Malaysia! Kita juga akan memberi update tentang “patient survey” yang kita ingin buat untuk tahu secara lanjut beban psoriasis ini terhadap kita, sama ada dari segi emosi, diskriminasi dan lain-lain.

 

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World Psoriasis Day & PAM Family Day 27th October 2018


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The most anticipated yearly event for our Psoriasis Association Malaysia members, family and friends is here! Mark your calendar and join us on 27th October 2018 at Level 2, Dermatology Ward, Hospital Kuala Lumpur for the fun-filled and knowledge enriching session. This event is made possible with the sponsorship from Leo Pharmaceuticals in collaboration with Hospital Kuala Lumpur.

There will be exciting activities for the young ones and family members that ensures a memorable experience for all. Most of all, this event is FREE!

Seats are limited so RSVP via Email to psoriasismalaysia.org@gmail.com or Whatsapp to Eugene +6019-6645494/Sofia +6017-6261111 to reserve a spot today! To be a PAM member, sign up here Latest PAM registration form 2018.