24 July ​2016 – AGM for Psoriasis Association of Malaysia


2016 Annual General Meeting – Psoriasis Association of Malaysia 

Please save the date. 

Venue: Pusat Pembelajaran Dermatologi (bersebelahan wad Dermatologi), Aras 2, Hospital Kuala Lumpur.

Date: 24 of July 2016 
Time: 12 noon to 4pm

Agenda and event details to be announced soon.

For enquiries, please contact us via this website or via Facebook. Thank you. 

World Psoriasis Day 2014 (Malaysia) 19 Oct Sunday


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You are cordially invited to attend World Psoriasis Day (Malaysia) on 19 Oct 2014 Sunday. This event is especially useful for psoriasis patients or caregivers who are new to psoriasis. Come and meet other patients who know first hand about psoriasis. Stand a chance to win RM 100 hampers via lucky draw.

2014 World Psoriasis Day Theme:  “Building a better world for people with psoriasis”

Agenda:

0930 Arrival of guests

1000 Launch of product by the major sponsor

1100 Light exercise – line dancing

1200 Talk by Dr Mazlin Baseri (Association Medical Advisor) – “Understanding Psoriasis”

1300 Lunch and get together

Venue: Academy of Medicine Of Malaysia
G-1 Medical Academies of Malaysia, 210 Jln Tun Razak,
50400 Kuala Lumpur, Malaysia
http://www.acadmed.org.my/

Please register by  17 Oct  2014  using the form below as we need to prepare enough  food for lunch &  ensure no wastage.

Psoriasis Association Event & AGM – Sunday 25 May 2014


PAM

 

Psoriasis patients in Malaysia are cordially invited to this year’s latest event on 25th May 2014 (Sunday).

Among the interesting items included in this event are:

  • Research findings from last year’s blood donation
  • Election of the committee
  • Update about the National Psoriasis Registry. 

All members are invited to attend. Patients who had donated their blood for genetic research at World Psoriasis Day 2013 are invited to attend this event where Dr Raoul & other doctors will spend some time with you from 415 pm onwards to explain about your blood donation genetic results.

Please tick the box in the registration form below in order for the doctors to prepare your personal report.

Please register by 22 May 2014  using the form below as we need to prepare enough  food for lunch &  ensure no wastage.

Agenda
1300 Lunch
1400 Introduction by President & Doctors
1415 AGM
1515 Dr Raoul & Dr Suhaili to announce the summary of research findings
1530 National Psoriasis Registry Update
1540 Talk by Dato’ Dr Rajen on “Ayurveda – The Oldest Healing Science”
1610 Other Updates
1630 Patient Consultation – Personal Research Findings
1700 Tea Time & Patient Catch up

Venue: Academy of Medicine Of Malaysia
G-1 Medical Academies of Malaysia, 210 Jln Tun Razak,
50400 Kuala Lumpur, Malaysia
http://www.acadmed.org.my/

 

 

Please register

KL Event: World Psoriasis Day (27 October 2013 Sunday)


Psoriasis patients in Malaysia are cordially invited to attend  World Psoriasis Day (WPD). The event details can be found below:

Date: Sunday 27 Oct
Location: Hotel Impiana  KLCC (Kuala Lumpur)
Duration: 11-5pm

Interesting activities include:

Talk: Psoriasis Is More Than Skin Deep  by Dermatologist Dr Mazlin Mohd Baseri
This talk covers the new discoveries of Psoriasis where patients have elevated risks for Psoriasis Arthritis, Cardiovascular diseases, Diabetes, Depression, Cancer, Obesity & Metabolic Syndrome.

Talk: Learn New Techniques To Manage Stress – by Psychiatrist Dr Rozaida Jaafar
Back by popular demand, Dr Rozaida is back to teach us how to manage stress

Talk: Learn How To Manage Your Diet – By Dato Dr Rajen M
This talk covers how one can learn to manage your health by managing your diet

Stand Up Comedy Show
Featuring Dr Jason Leong & others to bring you laughter as complimentary treatment 🙂

Meds & Health Exhibitors
Discover products related to Psoriasis (by various brands) to manager your condition and health

Lucky Draws
You may walk home with great prizes!

Please see the map below for directions. Please register yourself before attending the event.

Registrations close on 25th October at midnight. We need to determine the amount of food to prepare. Light lunch will be served.

Donate Your Blood For Psoriasis Research At World Psoriasis Day KL


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At the World Psoriasis Day Event in KL, by now you may have heard that the Psoriasis Association is organising a “blood donation” initiative for the purpose of Psoriasis research.
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A Malaysian researcher by the name of Dr Suhaili Abu Bakar from Universiti Putra Malaysia is conducting psoriasis related research on human genes. Dr Suhaili is researching the genes of  Asian people and looking into an area of genetic research known as “copy number variation”. Dr Suhaili is looking into “polymorphism in our genome”. From the association’s knowledge, Dr Suhaili is likely the only researcher in our country who is researching Psoriasis at the genetic level.
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So that we can understand Dr Suhaili’s research in lay man’s terms, Dr Suhaili explained to us that each individual will carry a different “copy number” for certain genes (including healthy individuals) and there has been proof for “beta defensin” genes (producing antimicrobial peptides) in Caucasian individuals. Dr Suhaili mentions that particularly for psoriasis, people who carry high copy number of beta defensin genes, that these individuals may likely be at risk to developing psoriasis.
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The Psoriasis Association will be assisting Dr Suhaili to collect blood samples on World Psoriasis Day (27 Oct 2013).

Research into psoriasis is an important step – in the journey of one day finding a cure for psoriasis.
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Here are some questions and answers about the blood donation activity:

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a) How much blood do we need to contribute?
Only very little blood is required from each psoriasis patient. It is approximately 1-3ml in small tubes only.
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b) Who will be at the event to draw the blood?
There will be a doctor and nurses at the WPD to facilitate the blood donation. All blood samples will be analyzed at Dr Suhaili’s lab in the university
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c) Do patient/donors need to fast or refrain from any type of food or drink e.g.alcohol before blood extraction?
This is not required and patients just have to turn up & acknowledge themselves as donor by signing a form.
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d) Does every patient at the event need to donate blood?
The donation of blood is on a voluntary basis. Having said that, we encourage as many psoriasis patients to donate their blood for psoriasis research.
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For more information, contact us at psoriasismalaysia.org@gmail.com or call 03-89484335

World Psoriasis Day 29 Oct – Coming Soon!


WDP_2013_Globe

October is just around the corner & the Psoriasis Association of Malaysia will be organising our annual get together for World Psoriasis Day (WPD). This year it will be held on Sunday 27 Oct in Kuala Lumpur. Venue to be announced soon.

We have interesting activities planned this year. As we are still preparing and if you want to volunteer to help out for the WPD KL event – please contact us via our email before 7th Sept 2013.

Should you wish to organise a WPD event in your own town or city in Malaysia, please contact us via email & we will provide you guidance on how to organise your own event.

Attached are 2 documents giving an overview of the 2013 theme “Global Access To Treatment” for this year’s WPD and campaign entitled “Treat The Patient – Save The Person”.

2013 Theme & Key Communication Messages

World Psoriasis Day 2013 Testimonial Campaign

Psoriasis Association: Lunch, Talk & AGM – 19 May 2013 (Kuala Lumpur)


Academy of Medicine of Malaysia

The Psoriasis Association of Malaysia will be holding a lunch, talk & the association’s 2013 AGM on 19 May 2013 (SUNDAY). All members & non members of the association are invited to attend. Non members can sign up as association members at the event.

Come on over to meet fellow Malaysians and residents who either have psoriasis or are caregivers. You can catch up with each other and make new friends.

Details are found below:

Academy of Medicine Of Malaysia
G-1 Medical Academies of Malaysia, 210 Jln Tun Razak,
50400 Kuala Lumpur, Malaysia

Map and photo here: http://bit.ly/khPtWL

Agenda:

1.00 pm Lunch & Fellowship
2.00 pm President Address
2.10 pm Doctor’s Address
2.15 pm Launch Of “Support Circles” Program
2.45 pm Annual General Meeting
3.15 pm Managing Your Stress For Psoriasis By Dr Rozaida (Psychiatrist)
4.15 pm Afternoon Tea & Gathering

Please RSVP & inform us of your attendance below. This will help us plan for the amount of food and drinks required with minimal wastage. See you there 🙂

New! Idea Sourcing & Action Program


During World Psoriasis Day in Kuala Lumpur, the psoriasis association had launched the ISAP Program. ISAP stands for Ideas Sourcing & Action Program. Have an idea you would like to suggest? Better still – browse through the submitted ideas online and choose to make it a reality. You may submit small projects that take merely hours or a longer term project. Please contact us via email for more details. Visit psoriasismalaysia.uservoice.com