It’s World Psoriasis Day Today! Everyone who has Psoriasis around the world is united on this day asking for “Access To Treatment”.
Tell your family and friends that it is World Psoriasis Day today! It’s up to us to work together to help each other manage our Psoriasis condition and one day find a cure.
Here are the photos from WPD 2013 in Malaysia where patients with Psoriasis came together because of our condition. Stay strong and have a great day 🙂
Click here to view the photos from World Psoriasis Day 2013 (KL Event)
October is just around the corner & the Psoriasis Association of Malaysia will be organising our annual get together for World Psoriasis Day (WPD). This year it will be held on Sunday 27 Oct in Kuala Lumpur. Venue to be announced soon.
We have interesting activities planned this year. As we are still preparing and if you want to volunteer to help out for the WPD KL event – please contact us via our email before 7th Sept 2013.
Should you wish to organise a WPD event in your own town or city in Malaysia, please contact us via email & we will provide you guidance on how to organise your own event.
Attached are 2 documents giving an overview of the 2013 theme “Global Access To Treatment” for this year’s WPD and campaign entitled “Treat The Patient – Save The Person”.
2013 Theme & Key Communication Messages
World Psoriasis Day 2013 Testimonial Campaign
The Psoriasis Association of Malaysia had attended the PSORCARE Workshop for pharmacists and nurses which is a coaching workshop for psoriasis patient care. Nurses and patients came as far as Penang & Johor to the Eastin Hotel on 23rd June 2013. This is the 2nd workshop in South East Asia (after Singapore and next stop, Manila Philippines). The workshop is regionally by Leo Pharma and PsorAsia. We wish to applause all parties for giving up their time on Sunday to make this happen.
The workshop began with Dr Najeeb Mohd Safdar the president of Persatuan Dermatoglogy Malaysia giving an introduction that included much encouragement to the participants. The association president Eugene then welcomed the participants and gave an overview of the psoriasis association including an overview about PsorAsia.
Dr Mazlin Mohd Baseri who is a lecturer and dermatologist from UKM Medical Centre gave a lively and comprehensive overview of psoriasis. The room was silent while viewing the heart breaking photos of patients with psoriasis. The treatment options that are adhered by dermatologist as part of treatment options were shared with the various participants. Many questions were also asked by the workshop participants about the realities that psoriasis patients face while adhering to daily treatment which included the difficulty in following their daily regimens.
A session was dedicated to patient care by having patients share their stories with the workshop. Encik Samad who was an ex policeman (patient of Dr Mazlin) then shared how he has been dealing with psoriasis since being diagnosed for the past 4 years. Most of his friends had originally thought that the disease was infectious. He mentioned that he felt very stressed and angry during the onset. Encik Samad had also explained that counseling from Dr Mazlin helped him. After taking the knowledge and explaining to his family and friends, they were also more supportive. Friends were less suspicious of his psoriasis and relationships were renewed.
Sister Yong Wee Hwa (senior nurse) from GHKL guided the patient conversation – so that a deeper understanding about the patient experience with the primary care professionals was better understood. Sister Yong had also shared that she came across many patients who were frustrated that there is no cure available for psoriasis. Sister Yong, had shared that in GHKL, there is a counseling support programme for patients with psoriasis which are conducted by trained nurses. This is indeed great news for all psoriasis patients.
The entire day workshop continued with Barbara Page, dermatology nurse & liaison specialist from Scotland. Barbara is also involved with the international skin care nursing group. In the workshop Barbara had covered topics such as “Motivating Our Patients For Change”, Case Studies (what are my treatment options, challenges in managing psoriasis, how to lead a healthy lifestyle), assessment tools and awarding of certification to participants. The workshop ended at approximately 5pm.
On behalf of all psoriasis patients including those who have just been diagnosed, we thank all those involved esp the nurses and pharmacist who have given time on an entire Sunday to attend this workshop for psoriasis patient care. Our appreciation goes our to you.
Psoriasis is a global health challenge 125 million people worldwide have psoriasis, yet psoriasis remains a largely hidden disease. Speak up for psoriasis on World Psoriasis Day, October 29
This World Psoriasis Day, October 29, you can help put psoriasis on the map. Add your pin and share your story and photos to raise awareness and get psoriasis on the international agenda.
Put psoriasis on the map »
World Psoriasis Day 2012 is being organised by the IFPA. As part of this global campaign, the IFPA has prepared many campaign material that people with Psoriasis can use to champion the cause for Psoriasis. Malaysians have been asked to be part of this Global Campaign & have your photo taken with the speech bubble (Click here to read and take action)
You may download any of the following ads, postcards and posters & have them printed. Make use of them to create awareness and understanding about Psoriasis in your workplace, university, school or community. Some ideas for using these material include sticking posters on noticeboards in universities, sending a postcard to a key influencer or placing the advertisement in hospitals or medical clinics.
CLICK HERE TO DOWNLOAD POSTER
CLICK HERE TO DOWNLOAD POSTCARD
CLICK HERE TO DOWNLOAD THE LANDSCAPE POSTER
CLICK HERE TO DOWNLOAD THE PRINT ADVERTISEMENT
For more information – please contact us via email.
William Li presents a new way to think about treating cancer and other diseases: anti-angiogenesis, preventing the growth of blood vessels that feed a tumor. The crucial first (and best) step: Eating cancer-fighting foods that cut off the supply lines and beat cancer at its own game.William Li heads the Angiogenesis Foundation, a nonprofit that is re-conceptualizing global disease fighting.
What has this got to do with Psoriasis? Well in his presentation at TED, psoriasis was listed as one of the diseases where “Angiogenesis is Out Of Balance”. Psoriasis is classified on the list as “Excessive”. Watch the video below to find out more.
Dr Bagel explains how to possibly improve your Psoriasis with our food and exercise choices.
The National Psoriasis Association of America recently had a webcast by Dr Jerry Bagel.
Dr Bagel is a medical director at the Psoriasis Treatment Center of Central New Jersey and a USA national expert on psoriasis. He has served on the national psoriasis association medical board. Should you be interested in more webcasts, sign up on the website (www.psoriasis.org) and visit the list of webcasts here.
The following information are excerpts from Dr Bagel’s talk during the webcast. For the full talk, please view the links below.
Psoriasis patients with severe psoriasis have extra billions of T cells in you skin that produce chemicals and make your epidermis grow too quickly. Molecules such as TNF not only cause the growth of epidermis, also increase Atherosclerosis (hardening of the arteries)
Pro inflammatory molecules are in people with psoriasis that doesn’t only cause psoriasis but can bring on the co morbidities such as diabetes, obesity, hypertension – 3 to 4 times more than normal people. It increases the risk of strokes and heart attacks.
Certain drugs make psoriasis worse – systemic steroids, beta blockers. Other medical conditions such as strep infections or earache can also make the psoriasis much worse.
30% of people who have psoriasis may develop psoriatic arthritis. This usually occurs 10 years after the onset of psoriasis. Some symptoms – Do you have stiffness in fingers or toes when you wake up in the morning? Another symptom is pain under your feet.
Fat in itself produces increase of TNF (Tumor necrosis factors) and this produces more T Cells. These are produced in the white blood cells. The more obese you are, the more psoriasis you will have and also likely to develop more of the co- morbidities.
Alcohol is terrible for psoriasis as it opens up the bloods vessels to the skin. More white blood skills then can get to the skin. White blood cells are making the chemicals that make your skin grow to quickly. When drinking alcohol, you are fueling the psoriasis pathway.
Compared with the general population, people with psoriasis have a higher
Atherosclerosis (hardening of the arteries)
Chronic obstructive pulmonary disease (COPD)
What can we do to minimise the inflammation:
1) Good food – Decrease pro-inflammatory condition
2) Good exercise – Decrease weight
“Eliminate processed foods”
Processed foods are turning right into sugar.
The sugar is turning right into fat.
Fat is turning into pro inflammatory molecules which will increase atherosclerosis
and risk of heart attack.
Cut out the red meat and switch to salmon. Get away from sugary foods, flour
and white rice (Note: Which is very difficult when eating out especially in Malaysia or Asia).
Dr Bagel also talks about the elimination of gluten which may help certain people
For more in-depth information, visit the National Psoriasis Association of America by clicking here or DOWNLOAD THE WEBCAST BY RIGHT CLICKING HERE & SAVE. Note: File format is WMV.