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The Psoriasis Association will be having it’s 2011 AGM on
May 29.Jun 05, 2011. The venue and agenda is to be confirmed.
What happens at the AGM? Well, the Psoriasis Association of Malaysia is a registered volunteer based organisation. Under the guidelines of forming an official association – you are required to organise this once a year. Besides voting for new committee members and other official tasks – members can get to ‘network’ in person, catch up with each other and make new friends.
More info will be shared soon. Watch this space!
Psoriasis researchers had visited Capitol Hill to seek funding.
Scientist Tom McCormick, assistant professor of dermatology at Case Western Reserve University in Cleveland, believes that connecting patient experience with research findings is vital in understanding the impact that psoriasis and psoriatic arthritis have on public health, including factors such as quality of life and work productivity.”Making that bridge is critical,” McCormick said. It drives his dedication to ensure that Congress continues supporting collection of data on psoriasis and psoriatic arthritis.
He spoke with lawmakers in early March as part of a group of scientists and volunteer leaders who traveled to Capitol Hill in Washington, D.C., as well as to the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) in Bethesda, Md., to advocate for federal support of psoriasis research.The goal is to stay in front of lawmakers who last year provided $1.5 million to fund the first stage of psoriasis data collection at the Centers for Disease Control (CDC) in Atlanta. By keeping the need for psoriasis research in front of Congress, the hope is that funding will continue and the CDC can advance from the initial phase to the actual data collection.
Also participating in the fly-in were Terri Theisen, representing the National Psoriasis Foundation Board of Trustees, who told Congress about the Foundation’s investment in and commitment to research for a cure, and Lauren Oickle, who is pursuing a career in science in part because of her experience living with psoriatic disease.
Psoriasis researchers joining McCormick included:
Anne Bowcock, Ph.D, professor at Washington University School of Medicine in St. Louis;
Nehal Mehta, M.D., M.S., preventive cardiology, director of inflammatory risk, Division of Cardiovascular Medicine, at University of Pennsylvania School of Medicine in Philadelphia;
Abrar Qureshi, M.D., assistant professor, Harvard Medical School in Boston.