Our Secretary to Association, Sofia Lovi Ramasamy sharing her experience to encourage more psoriasis patients to come forward and join our community. You are not alone, we are here for each other. Together we can create more awareness and drive for change in public perception towards our condition. Here is Sofia’s experience.
“I was diagnosed with psoriasis at the age of 12. Being so young, I didn’t understand what it was. It started with extensive dandruff on my scalp. Then I started getting patches on my face and both my upper and lower limbs. It became worse as I got older. I was like a snake going through the shedding process.”
“At one point the lesions covered 70% of my body. Because my immune system was so weak, I started losing my hair. I lost about 10 kgs. I lost mobility. That’s when the arthritis started. It started with my toes. Then my neck started to fuse. My fingers and shoulders were affected as well.”
“In 2014, I was bed ridden for a year. I couldn’t move. I couldn’t feed or bathe myself. I had to rely a lot on my family and it made me feel like I was a burden to them. I couldn’t even contribute to society or to myself. I didn’t see the point of living. That was a really difficult time for me. There were a lot of demons in my head. I had a lot of suicidal thoughts.”
“What pulled me out of the darkness is talking to other patients in the hospital. I spoke to a lot of people. Some of them had terminal illness and only had a few more months to live. I tried to understand what they were going through. It made me feel like my situation wasn’t that bad. It gave me the strength to get well. It gave me a better understanding of my purpose in life.”
“I always involve myself in community building and other social activities. Being able to contribute and be of service is the centre of my life. I want to help create awareness about psoriasis so the public will be less ignorant about the condition. I want to be the voice for other patients who are basically voiceless.”
This article first appeared in True Complexion.
Psoriasis patients are invited for a talk on 12 May 2018 which is organised by the association & Hoe Pharmaceuticals. Please RSVP and see details attached
Pesakit Psoriasis dijemput untuk hadir pada 12 May 2018 bagi acara perubatan mengenai Psoriasis. Acara ini dianjurkan oleh Persatuan Psoriasis & Hoe Pharmaceuticals. Sila hubungi persatuan untuk pendaftaran.
In conjuction with World Psoriasis Day (WPD) 2017, the Psoriasis Association of Malaysia presents to you a special edition bulletin for WPD 2017.
Thr objective of this booklet is to promote awareness about Psoriasis to the public through the dissemination of information.
The association wishes to thank the sponsors for this special bulletin being Novartis and Leo Pharma.
Click here to download the special edition bulletin.
For those in the Klang valley, you are welcome to attend this event in conjunction with World Psoriasis Day 2017.
For World Psoriasis Day this year, Persatuan Psoriasis Malaysia wishes to announce the following event.
World Psoriasis Day 2017
Event on 30/10/2017
“Psoriasis Inside Out”
1 Poster exhibition (30/10/17-6/11/17)
2 Booth exhibition
3 Meet the Psoriasis Association of Malaysia
4 Interaction with public and patients
5 Research activities
Come and join us on 30/10/2017 at the University Malaya Medical Centre (UMMC) concourse Menara Utama (8 am to 5 pm) to learn more about psoriasis.
For Psoriasis patients in Penang, Melaka & Kuching – please take note of the following events and you are welcome to contact the organisers.
Please note that the above events are not organised by the Psoriasis Association of Malaysia & the association is making the above information available to create awareness of the events and activities for Psoriasis patients in Malaysia.
30 April 2017 – A big thanks goes out to Dr Phang Cheng Kar who came to the Psoriasis Association’s gathering. Dr Phang conducted a practical demonstration on how Mindfulness Based Stress Reduction (MBSR) could help Psoriasis patients with their condition. Click on this Youtube link to watch the talk and the follow the links provided to know more about Dr Phang’s Mindfulness methods.
Want to learn how to manage your stress to help your Psoriasis condition? The Psoriasis Association has organised a talk entitled “Mindful breathing for stress reduction” by Dr Phang Cheng Kar that will be held before the 2017 Annual General Meeting (AGM). You will learn how to apply stress reduction to daily life.
Stand a chance to win a FREE seat to Dr Phang’s MINDFULGym (1 Day Workshop) worth RM350 per person held on 18 May.
TALK & AGM DATE: 30 April 2017
LOCATION: Dermatology Ward, Level 2, Hospital Kuala Lumpur
Please find the agenda for the event below:
1300 Introductory remarks by President of Association
1315 Talk : “Mindful breating for stress reduction” by Dr Phang Cheng Kar
1500 Lucky Draw
1515 Concluding Remarks & End of AGM
Registration Fee: FREE for members and RM 15 for non-members. Be a member today by clicking on the “Become A Member” link at the top of this website.
Kindly register your attendance by April 25, 2017 via the “Contact Us” feature on our website or via Facebook. We hope to see you at the event.
Click here for Google maps viewing.
Association members are invited to attend.